Written by Kaite Belmont, Healthcare Communications Professional & MS Advocate, interviewing Benita Talati, Attorney
Soon after I was diagnosed with multiple sclerosis, after the initial shock and fear had somewhat quieted down, one of the questions that crossed my mind was – how does this impact my career? What do I do now? The words “disclosure,” “accommodations,” and “protections” took on new meanings – and I wasn’t sure how to start to unpack these terms.
I knew that I wasn’t alone in needing clarification on how to navigate this new reality, as others living with chronic illness had likely also wondered about these topics, and I wanted to help educate myself and others. So, I connected with fellow Chronic Boss Collective member Benita Talati, an attorney with a background in personal injury, mass tort, and employment law, to learn more about workplace accommodations, disclosing your disability at work, and how the ADA protects those with disabilities. Check out our Q&A below for some helpful information!
BT: The Americans with Disabilities Act (ADA) of 1990 requires employers with at least 15 employees to provide “reasonable accommodations” to qualified employees with disabilities. A qualified employee is one who can perform the essential functions of their job with or without “reasonable accommodations.”
BT: An accommodation related to employment is something that can assist the employee with performing the essential functions of their job. An accommodation is “reasonable” so long as it does not pose an undue hardship to the employer. For example, reduced hours or flexible hours to accommodate medical appointments sound reasonable in theory, however, if such an accommodation could result in coverage issues such that there would not be enough workers, that would be an undue hardship to the employer and therefore unreasonable.
Another example of a common accommodation many employees seek is ergonomic equipment such as an office chair, keyboard, or standing desk. While it may be a reasonable accommodation, if the cost of a particular model or brand poses an undue hardship to the employer, then the employer is not required to pay for a cost prohibitive equipment and can pay (or reimburse) the employee for an equivalent item that is less expensive.
Extra breaks, special lighting, headphones, remote work and extended deadlines are other types of accommodations that employees may seek.
BT: The ADA does NOT require employees to disclose their disability prior to being hired nor are employers permitted to ask employees to disclose their disability. However, in order to receive reasonable accommodations, the employer must be on notice that the employee has a disability and needs to be reasonably accommodated.
A best practice is for employees to wait until after accepting the job offer to request reasonable accommodations. Typically, a company’s HR department will have a form for the employee to fill out and submit along with medical documentation such as a letter from their medical provider. For the employee-patient, a best practice is to write a letter for their provider including a list of accommodations they are seeking such as breaks, remote work, flexible scheduling, any equipment they might need, etc. To reiterate, employees are not required to disclose the name of their chronic illnesses or disability.
BT: Under the ADAAA (Amendments) the definition of disability (physical or mental impairment that substantially impacts major life activity) was expanded to include a broader range of medical conditions to now include visible and invisible disabilities.
The ADA protects people with disabilities in the workplace by prohibiting discrimination based on perceived or actual disability, requiring covered entities (organizations with at least 15 employees) to provide reasonable accommodations and access. For example, promotions cannot be denied to employees with disabilities or perceived disabilities due to their disability.
BT: The benefit of voluntarily disclosing a disability is that many companies, such as government contractors and the federal government, have quotas they are trying to meet to increase the number of workers with disabilities in their organizations. By self-identifying as a person with a disability, a candidate could increase their chances of getting hired.
The federal government has a program called Schedule A, which allows qualified candidates with disabilities to apply for positions in a separate hiring track. Candidates must still qualify on the merits. Companies in the private sector also receive tax breaks for hiring workers with disabilities. Thus, it can be beneficial to self-identify as a person with a disability.
Kaite Belmont is a writer and healthcare communications professional living in Chicago. After being diagnosed with relapsing remitting multiple sclerosis in April 2023, talking to others living with MS and learning about their journeys helped her feel understood and not so alone. Through her blog, optiMStic, she hopes to help others with MS by sharing her experiences and advice, and empowering them to advocate for themselves. She is a member of the Chronic Boss Collective and an MS Ambassador for the National MS Society.
Benita Talati is an attorney, currently a Senior Law Clerk lead supporting a federal government agency processing FOIA requests and utilizing e-discovery skills, who has had to overcome multiple challenges and personal trauma. Once predicted to not do well in school or go to college due to amblyopia, she earned a J.D., paralegal certificate and a B.A. in political science and even graduated in the top 5% of her high school class despite not being able to see what was written on chalkboards due to contrast sensitivity.