Mackenzie Abramson is a dedicated advocate for rare and chronic disease patients, driven by her personal journey and commitment to amplifying the voices of patients, caregivers, and advocacy groups. Diagnosed in her mid-20’s with her first rare disease, Mackenzie pursued advanced education to bridge the gap between public health initiatives and rare disease, honing her skills in self-advocacy while navigating the complexities of her own diagnostic journey. Her advocacy efforts have since spanned years and reached an international scale, involving active participation and public speaking at key events with organizations such as Global Genes, NORD, the EDS Society, NIH Rare Disease Day, and more.
Currently, Mackenzie is embarking on an entrepreneurial journey, launching her first patient advocacy and engagement consulting business. Her work focuses on rare diseases, chronic illnesses, mental health, and women’s health, while partnering with the healthcare, pharmaceutical, and biotech industries to create meaningful change. Drawing on her experience in research program communications, public health programming, and patient operations, Mackenzie specializes in bridging the gap between patient communities and industry stakeholders, ensuring that patient needs and insights are at the forefront of research, development, and care initiatives.
Mackenzie is committed to empowering patients, transforming the way their voices shape the future of healthcare, and enhancing patient engagement through her new consulting venture. By sharing her story and insights, she hopes to inspire others to navigate their healthcare challenges with confidence and resilience.